Healthcare Stories
Thank you to everyone who has sent in their universal health care story. As you can see from the very many stories in the pages below, many Americans living abroad feel strongly about this issue. We believe that our stories will make a difference by showing the many sides of universal healthcare - from an average check up, to a hospital stay, to stories about our lives being saved thanks to universal health care.
Would you like to add your story? It's not too late, here's how: Take a selfie with our selfie card (or draw your own!), then add your picture and story in the texbox. You can also make a video and send in the url (just add the link in the textbox).
We'll share these stories with Congress to help in their fight for affordable healthcare for all Americans.
Please note that the stories below are all user submited and reflect individual opinions.
Prevented cancer #DAresists #Medicare4all
In April this year, I had a papsmear screening which showed that I had cervical dysplasia (CIN3). I was told that I would need to have surgery to prevent cervical cancer. This was a huge shock as I have always been healthy. Thanks to Medicare in Australia all my doctors visits including surgery was free. I was able to have this procedure knowing that I didn’t have to give up a choice of paying for rent or eating. I support health care for all so that we all have an opportunity to prevent deadly diseases without struggling to afford cost of living.
Thank God For My German Health Insurance #DAresists #Medicare4all
I've lived in Germany since 1999. In 2006 I was working in Miami for business when I was diagnosed with pericarditis and had to have a surprise heart surgery. I was 36 at the time and thought I had a bad cold. I was at the hospital almost a week and the costs were over $100,000.00. I repeatedly called my German insurance company, and they insured me that I was covered for up to 3 months outside of Germany. I was instructed to provide all of the hospital bills and informed that I'd be reimbursed, but that I'd be responsible for paying the hospital back. I returned to Germany, submitted the reams of bills and sure enough over 80k EUR was in my checking account(!) 3 weeks later. That was the easy part. It took me over 6 weeks to actually pay the bills. The process was byzantine and there was very little transparency or logic to all of the charges. Collections agencies were calling me, and when I snapped back, clearly not intimidated and irritated that TRYING TO PAY had become a full time job, they dropped their bullying schtick. It really made my heart to go out to those who couldn't afford care. An Illness like the one I had is terrifying and life changing, how cruel to have to suffer a personal financial catastrophe on top of such an experience. FIX THIS!
Universal healthcare makes life with chronic illness just a bit easier #DAresists #Medicare4all
I am writing this story not to place blame, but to share my story of how an inadequate health care system has had a negative impact on my life. I am only a single example of how a bad system can destroy a potentially strong link, and I would prefer that such things do not happen en masse due to the proposed health care bill. I was diagnosed with Systemic Lupus Erythematosus at the age of 7, in 1977. At that time, it was almost a death sentence. People died from the disease, and my pediatrician did all he could to keep me alive. Facing potential kidney failure, he put me on a dosage of steroids (Prednisone) higher than even an adult should have taken. This daily dose was part of my medical regime for a year, and while it may indeed have saved my life, it has also - to some extent - ruined it, which is the purpose of telling you my story today. The high dosage of steroids marched through my body like a determined soldier, affecting my body in various ways. Stunted growth, delayed development, Cushing’s syndrome, mood swings, and the worst – softening of the bones. Unfortunately, there was little warning about these symptoms, and when I was well enough I still wanted to be a child – to run, play, climb trees, ride bikes, take dance classes, ice skating, roller skating – and by the time a new pediatrician did warn me of the dangers, it was too late. At age 11, several verterbrae in my upper spine collapsed, just from sitting at the piano. Then, it was discovered that my hip joints were already beginning to disintegrate – avascular necrosis of the hips at age 12. I was too young and too sick for a hip replacement at that time. After age 18, it was decided to monitor my condition, as hip replacements did not last very long, and the longer we could wait, the better it would be, so as not to have the risk of more surgeries than necessary in my lifetime. I persevered. I did well in college, then started a Master’s. I worked full-time. But I had to decline a scholarship to go to law school because the pain had made day to day life more difficult. By the time I was in my mid-20’s the pain was severe. I had to normalize the pain and keep going, as I was someone who refused to “lie down” in the face of my illness, but I went to the orthopedist to inquire if it was indeed time for my surgery. This doctor told me no, because insurance wouldn’t pay for it, as it would be considered “elective” surgery, since I could still walk. Stunned, I left his office in tears. My only choice was to keep going, and endure. At that time I was living in Tennessee. Slowly, my ability to function normally worsened. I couldn’t work as many hours. I couldn’t be active. Yet still, I could walk, so the surgery wasn’t available to me. Yet I got lucky. I got married and moved abroad. We settled in Germany, and within a couple of months of moving to Germany I could no longer walk without the support of crutches. The pain had gotten unbearable, and so I consulted an orthopedist here. The look of shock and pity on his face when he first saw my X-ray told me how bad it was, and I proceeded to see this look many times as I consulted surgeons and planned my surgery. The damage was so extensive to my left hip that the bone had not developed properly – it was smaller than the average implant, and a custom implant had to be made. My pelvis had tilted 6cm in an effort to protect the left hip, which had broken several times. When the doctor asked why I hadn’t had the surgery in the U.S., I told him it was because they said it was elective surgery. The look of disgust and anger on his face was palpable. I was told that damage so bad took decades to occur, and it was likely that surgery would have been necessary when I was 18. In fact, had I lived in Germany, it would have happened at 18, despite any risks, because it is considered a quality of life issue. Imagine that: a health care system where proper treatment is based on improving a patient’s quality of life. Unfortunately, the successful hip replacement surgery (both sides – I make quite the buzz at airport security) is not the happy ending to my woeful tale. It has been three years since the operation on my left hip, and I am still experiencing severe pain. My range of motion is improved, my stamina is better, and the pelvis is almost back to normal (1cm difference). Yet I can’t sit for more than an hour without feeling discomfort, I can’t stand in one position for more than a couple of minutes without a lot of pain, and often I can’t even rest comfortably in bed. I walk and exercise as much as I can, but obviously I must be careful. I see a physical therapist twice a week, which helps as well. I must take pain medication on a regular basis. All other possibilities have been ruled out, and my orthopedist has concluded that the pain is the result of so many years of degeneration and the terrible condition of my hip, and the pain is possibly chronic. In essence, by refusing to make a small investment in my health care, my potential was squandered: including years of work, academic achievement, and productive contribution to society. I am facing the reality that I may never know a life without pain. It is a small thing, compared to a lot of other people. Still, after 40 years of pain, the end result of my successful hip replacement surgeries was expected to be no more pain, or at the very least, very little pain – and knowing that I face more pain, with no confirmation that it will end, is daunting to me. I won’t give up. I have no reason to. I live in a country with a health care system that takes exceptionally good care of me. The U.S. should perhaps look into the German system, if Congress is having trouble trying to “fix” ACA. I know there are also a lot of good ideas out there, from some Democrats and Republicans. The citizens of the United States of America deserve a good health care plan. People are more productive and happy and spend more money when they don’t have to worry about what happens if they get sick, and these are all crucial requirements for a successful economy. Alas, I digress, my story is told, and you know what you have to do.
Great long term peace of mind in the UK #DAresists #Medicare4all
The NHS has been my sole health care provider for the last 17 years. Whilst I am in good health I have spent virtually no money on my healthcare except through taxes. I am able to get an appointment with my GP when required within a reasonable timeframe and am sent on the specialists when required. I personally have not had to wait very long for an appointment. When my son was born both he and my wife needed to spend an extra week in the hospital because of a minor complication. Again, the extra stay did not incur any expenses to us. I find staff at the NHS to quite competent. Having the NHS is very reassuring. I never have to think about whether I am covered and whether I can afford medical services. While perhaps not perfect, it is awesome to have, especially when compared to the millions living in the US whose healthcare is precarious. Long live some sort of version of publicly funded medicine!!! David Wasserberg, US citizen, London, England
crash / heal #DAresists #Medicare4all
This summer I had a mountain bike accident and broke both wrists, my collarbone, and two ribs. I was transported to the hospital by a helicopter in a difficult rescue and treated in the emergency room, immediately. The accident has thus far involved three hospital stays of 3 to 4 days each and two operations under full anaesthesia. Everything was covered including all future expenses for physical therapy and elective surgery to have plates removed. I come from Massachusetts and have always experienced good medical care. The difference is that here in Austria I work freelance but have state insurance that covers me for all medical needs at a minimal cost with little or no deductible. I can focus on healing and feel safe to just rest and wait till my injuries recover to go back to work. Although it feels unreal, it is an amazing and true privilege of life in a country where healthcare is a right, not a luxury.
No more worry about seeking medical attention #DAresists #Medicare4all
Before moving to Germany to study, I had two medical incidents (one of them requiring an ambulance) that my insurance declined to cover. My savings were completely wiped out from the financial shock and the prices for the procedures were exorbitantly high (an ambulance in NY costs about $100/minute which came to $2000 after a 20 minute ride). Since coming to Germany, I've discovered the benefits of a system that is not based on the monetization of healthcare. I no longer have to fear the small print on the contract pages of an insurance company, and I don't hesitate to seek medical attention when I need it.
I had to quit my job in northern California... #DAresists #Medicare4all
I had to quit my job in northern California to bring my husband to Mexico for dementia care. There was no way we could afford care in the U.S. I had to leave my family and friends to come down here and oversee his care. I gave up my Plan F supplemental health insurance because of the cost and the fact that it does me little good down here in Mexico. I may get a high-deductible supplement to Medicare and use medical flight insurance but that only works if I can be stabilized and then sent home by plan in the event of illness or accident. That won’t work for my husband because a trip for him is next to impossible at his stage of dementia. I fail to understand why our insurance carriers will not pay for care in a country where medical care is much less expensive than at home. I suspect they have agreements with health care providers in the U.S. and gain some financial advantage since it’s always about money in that industry. There was a time when I believed in free enterprise in the health care system but judging the behaviors of drug manufacturers (who charge more to all Americans than to residents of other countries) and by the exorbitant costs of health care that will break the bank of all but the richest Americans, I have begun to consider the philosophy that health care should be a right rather than a privilege. This is from someone who traditionally has paid out of pocket for much of my health care and that of my family; not because we didn’t have insurance, but because we chose to use alternative medicine, which is seldom covered by insurance policies but which serve us well.
20 Years of Coverage in the UK #DAresists #Medicare4all
(This was printed in my local paper – Montrose Daily Press- earlier this year.) Dear Editor, I was raised in Montrose, Colorado from the age of 5-18. I moved to London, UK directly after college and have been here ever since (going on almost 20 years now!) Universal health care is all I have known for the duration of my adult life. I have never had to worry if I could afford insurance or if I qualified for insurance even though I have some pre-existing conditions. When I lost my job , I didn’t have to worry if I would still be covered. When my husband changed jobs or when he decided to work for himself, the health coverage of our family was never in jeopardy. Breaking Bad is one of my favourite shows but it could never happen in the UK. If you get lung cancer, you don’t have to become a drug dealer in order to pay your medical bills and feed your family without going bankrupt! We are human beings. And our bodies break. And I can’t tell you how comforting it is to know that with or without money, my family’s healthcare is taken care of -- and I look at my own country in disbelief. The idea that some Americans get the finest medical care on earth, while tens of thousands of others are left to die for lack of care -- doesn’t sit well with me. British health care isn’t always perfect - but it allows me to sleep at night without worrying that one I might have to choose between healthcare for my daughter and a roof over our heads. I so wish my fellow Americans had the same freedom. Yours Sincerely, Ms Jerramy Fine
If It Can Happen to Me, It Can Happen to Anyone #DAresists #Medicare4all
American society has made life easy for me because I am male, white, and straight, and I don't have any disabilities. So you would think that I would never have to go without my basic, Human needs being met by my society. Such as basic healthcare. But life is complicated, and in 2004, my basic needs DID go unmet by my society. I was between jobs, had to go to the emergency room for heat exhaustion, and ended up with a $2800 bill, which I didn't have the money for. I was scared. I wrote to the hospital and told them this, and they forgave almost all of the bill. But is that the way it's supposed to be in such a rich country? A citizen who supposedly is everything the society idealizes, no longer all that ideal when he suddenly needs healthcare? If it can happen to me, it can happen to anyone. And it does. Please give all Americans affordable health care. #DAresists #Medicare4all
A New Kidney Thanks to Canadian Healthcare #DAresists #Medicare4all
Four years ago, I was diagnosed with chronic kidney disease and was told that I would need dialysis/transplant within 1-2 years. My renal failure occurred two years ago, requiring dialysis. For the first few months it was necessary to go to the hospital for those treatments. Eventually I started training for home hemodialysis. When I was ready, a machine was installed in my home, saving 90 minutes round trip travel time. It also afforded me the ability to time my treatments to suit my lifestyle. These treatments cost about $10000 per month, all of which was paid for by my provincial health plan. The story doesn't end there. Several months ago, I had a kidney transplant with my wife as the donor. Again, this was paid for in its entirety by the provincial health system. I will now require medications costing about $3000 per month for the rest of my life. Our employer health plans cover those costs costs for now. In 3 years I will be 65. At that time the provincial health system will assume those drug payments. A nation's healthcare system is a strong indicator of how its government values and cares for its citizens. Shame on the US for placing insurance companies and their cronies before its people. Long live single payer universal healthcare!
An emergency experience in Hong Kong #DAresists #Medicare4all
About a year and a half ago, my then-boyfriend (now husband) was out for a bachelor party in Lan Kwai Fong, one of Hong Kong's nightlife districts. As he walked down the street, a crazed man ran by brandishing a broken glass bottle, which cut my husband's arm quite severely. He was taken by ambulance to a public hospital, where he waited several hours to be seen/admitted. He ended up staying in the hospital for a few nights, awaiting exploratory surgery to ensure no glass was embedded in his arm and no nerves were damaged. Thankfully, the eventual surgery went well and he has had no complications to date. Although I was shocked that my husband had to wait hours/days at various points during his treatment, I believe he received a high quality of care, especially considering the cost. Upon leaving the hospital, he paid only about US$50 to cover the entire experience. Subsequently, he needed to go for check-up visits to have his dressings changed, and I think the charges were something like US$2 each time. Hong Kong does not exactly have universal healthcare, rather a combination of public and private systems. I am very grateful that the public option here is extremely affordable and accessible, otherwise my husband's experience could've been much more costly. Thanks, Sydney
Great Cancer Care Coverage in Hong Kong #DAresists #Medicare4all
Member of DA Abroad for over 20 years. Born in Milwaukee, WI - 1940 Last residency in USA = Bucks County, PA - 1975 Since then I have resided in Hong Kong, with a 6 year + residency in Ho Chi Minh City until 3 years ago - now retired in Hong Kong living on USA Social Security plus various hourly teaching sessions at both HK Gov & Private schools. Totally dependent upon HK Gov Medical services My story: The Gov Medical series here are patterned upon the UK National Health Service (NHS). Everything is based upon our HK ID cards, which contain a photo and ‘smart chip’ containing our fingerprints along with other data. We must always carry our ID’s and present it at every clinic / hospital visit. All fees are in USD Dollars, based upon an exchange rate of $1.00 USD = $7.80 HKD. It costs $6.50 to see a General Practitioner at a clinic. EVERYTHING is computerised and when one visits a doctor, he or she will take a moment to review one’s medical records. This is so efficient that if one has been scheduled to see a specialist just AFTER taking a FREE scheduled X-Ray, it will be available for viewing by the Doctor within minutes. A specialist Doctor (Oncologist, Urologist, Ophthalmologist, etc. costs $17.30 for the first visit and if he/she suggests a follow up visit, the ensuing visits will costs $10.25. The vast majority of prescribed drugs are FREE or a small token fee of $1.25. I was diagnosed as having Prostate Cancer a year & a half ago. It began with a GP suggesting that I have my prostate checked. (I was 75 years-old at the time.) The first GP visit cost $6.50. The urologist (manual exam) cost $17.50. A further exam (Ultra sound plus tissue samples) cost $17.50. I was given the choice of surgery or Radiology; I chose the latter. I was told that I would have three tiny gold dots placed into the Prostate to provide an exact target for the Radiology treatment. That cost $19.50 INCLUDING an overnight stay in the hospital. I was then booked for an MRI, CT Scan and later a Bone Scan. All of these were FREE. I then began a series of 38 daily Radiology treatment; Monday to Friday, not on weekends at $10.25 each. The Radiology equipment was state-of-the -art, from the USA. At the end of the treatment, I saw both an Urologist ($10.25) and Oncologist ($10.25), as these were follow-up visits. My cancer condition, based upon (FREE) blood tests went from 14.8 to 1.6, which the Oncologist considers as ‘cured’. So this quality medical experience only cost a total of $470.00!
#DAresists #Medicare4all
Bicycle accident. Two broken ribs, punctured lung. Ambulance, pump/tube to drain lung, x-rays daily, medications (including those normally taken), 4 days in intensive care, Cost: 65 euros (about $75 dollars at the time).
Universal health care in Sweden saved my son’s life #DAresists #Medicare4all
I moved to Sweden for family reasons years ago, and both my children were born there. I’m grateful to the Swedish health care system for giving them the best possible start in life, including prenatal care and obstetrics, regular pediatric check-ups and occasional visits to the emergency room. No health care system is perfect, and doctors’ waiting rooms in Sweden are not as luxurious as in some in the US, but we’ve always received excellent medical care. This is especially apparent in the extensive medical treatment necessary for one of my children, who due to a congenital deformity suffered from life-threatening kidney infections early in life. Many of us hope that we can avoid sickness and injury by leading a healthy and responsible life, but sometimes bad things happen anyway. It was terrifying for us as parents to find ourselves in the neonatal intensive care unit with a three-week-old baby in critical condition. But through our fear and grief, we could see that no resources were being spared for our son. In fact, costs and insurance were never an issue (there wasn’t any paperwork to fill out) because in Sweden medical care is free of cost for all children up to the age of 18. After several more hospital stays and surgeries, our son recovered. Throughout this experience, I was constantly impressed by the fact that not only my son, but every single child in Sweden receives the same high level of care, regardless of their parents’ circumstances. Swedes recognize that children are society’s future, and that children deserve society’s support. As a result of treatment by medical specialists in Sweden, my son, now a young teenager, is in full health and thriving. The doctors call him in for regular check-ups, and tell us that, though they do not expect him to have more problems, they will continue to monitor him throughout his life, just to be on the safe side. One day my son may want to move to his other home country – the United States – and if so, I hope he will not be denied insurance because of this pre-existing condition. Most of all, I hope that American society will do better by all its children and provide them and their parents universal health care. It’s the only compassionate thing to do.
Universal care? How about private insurance? #DAresists #Medicare4all
I have lived in 3 countries with genuine universal care, and could repeat the stories I see already posted. But let me blow your mind with this one: As a foreign resident and freelancer in Spain, I am required to buy private insurance. The cost? I pay less for 6 months -- for full coverage including dental and eye -- than I did for 1 month of catastrophic care at home -- and forget the eyes and teeth, of course.
No healthcare worries at all since moving to the UK #DAresists #Medicare4all
I moved to the UK on April 4, 2010 and have lived here since. From April 4th onward I stopped worrying about health insurance coverage, premiums and health care costs, all due to the UK's National Health Service. What was once one of the largest sources of stress and concern in my life disappeared literally overnight. The US could have this too - after all, most developed economies in the world provide health care for their citizens. Healthcare for all isn't radical. It's obvious.
The price of health should not be stress and debt #DAresists #Medicare4all
I am an America who has lived in a number of different countries (now in the UK). I gave birth to my daughter in France. Due to complications, I ended up in hospital for 4 weeks before she was born, prematurely, by C-section. After another 2 weeks in the hospital in a special unit for premature babies and their mothers, we left the hospital together, both healthy. My costs for all this? A small fee for the hospital meals I had eaten, in the final week in which I was discharged but allowed to remain with my baby. That's it. A very stressful time was not made more stressful by fears of mounting hospital bills, and there was no question that we would not get the care we needed. We moved to Norway, did not pay any supplemental health insurance, but were taken care of wonderfully by the state. Now I live in the UK, where our health care is likewise available without massive stress and worry and cost. It saddens me to visit my family and friends in America, and hear stories of their struggles to pay for the care they need or worse, to go into debt or to go without and suffer, as they cannot finance it. It is to me, by far more sensible, and by far more civilised, to make universal health care a right, not something that anyone should have to worry about having access to. Health care should be affordable and accessible; much of the world has realised this. Isn't it time that America woke up to the fact that capitalism can be compassionate? It does not have to mean brutal survival of the fittest/richest (i.e. those able to earn enough to afford the "luxury" of health). We need to be a society that recognises basic human dignity and needs; a healthy and secure society is a happy and productive society.
Preventive coverage in Canada #DAresists #Medicare4all
I have lived half my life in the USA and half in Canada. I have had positive experiences with the medical systems in both countries - because fortunately, up to this point I have been healthy and have not had any serious medical issues or emergencies. One benefit to the Canadian system that isn't often mentioned or considered is that it promotes wellness and preventative medicine. When one doesn't have to worry about the cost of a doctor visit one is more likely to go to the doctor to have minor issues diagnosed or checked out BEFORE they become a crisis or a more complicated situation requiring expensive and lengthy treatments. Universal health care gives me peace of mind and helps me to stay healthy. Thanks for all you do, DA! Sincerely, Stephanie
The Italian Health Care System Saves Lives #DAresists #Medicare4all
In December of 2000, two months before my due date, I had an emergency c-section to deliver my daughter because I had developed HELLP Syndrome. My daughter weighed less than 3 lbs. and required a respirator. We weren't able to bring her home from the hospital until her original due date, 2 months later. Both in the hospital and afterwards, my daughter and I both received excellent care. During follow-up visits it was discovered that my daughter is deaf. She has received speech therapy, hearing aids, and routine hearing tests for the past 17 years. My hospitalization, surgery and follow-up care entailed zero out-of-pocket costs, as did my daughter's care. We have contributed to the cost of more sophisticated hearing aids, but medical exams, speech therapy and tutors have been without charge. Another important aspect of this system is the emphasis on preventative medicine and early diagnostics. Two years ago during a routine exam my doctor found a suspicious mole on my back. It was removed, and turned out to be melanoma, caught in the early stages. Had I been unable to afford the original doctor's visit, or the follow-up surgery and treatment, it might have grown and spread, eventually resulting in much more expensive and invasive procedures, or even killing me. When I talk about the health care system here I don't say 'free' because we pay taxes and thus our money goes into the system that provided for these competely unexpected events, and for our other health needs, as well as those of everyone else in Italy, where we live. I am grateful every day to Italy and its National Health Service, and I only wish to see the friends and family I still have in America benefit from a similiar level of truly affordable, life-saving care.
Several experiences from many years in France #DAresists #Medicare4all
Aside from the usual and thankfully banal problems of bearing and raising three children, I can report on fairly major issues. NB: I also have a “mutuelle”—a collective non-profit complementary health arrangement that costs approx. €2000 a year and covers the 30% French social security doesn’t pay in some cases. Except in the last, worst item below I don’t remember which paid what. --A hard fall on cement the night before I was supposed to lecture in Oxford resulted in a hip replacement and hospitalisation for almost two weeks [Radcliffe Hospital] plus special transport arrangements home to Paris. French social security and probably the mutuelle reimbursed costs to the Brits. --Three fractured vertebrae and three “vertebroplasties” in which they inject resin cement: cost zero --Worst: in late 1999 my husband was diagnosed with a fairly rare form of cancer : He died a year and a half later after two operations, one very long and risky, intensive care, a whole variety of convalescent measures at home or in hospital, daily nursing visits when at home and, a particular blessing in the circumstances, he was able to spend the last two weeks of his life surrounded by his family at home, in a hospital bed with perfusion and three times daily visits from a nurse as well as regular ones from our family doctor. He could self-administer doses of morphine as needed and we were all with him when he died. Cost for us: Zero, entirely paid by French social security since he had a recognised “serious illness”. I sometimes tell this story now in talks to encourage the French and other Europeans to fight for all our public services, explaining to them we would have had to sell the house if we had lived in the United States. Since I have mentioned giving talks, it may be worth adding that after Smith College junior year abroad where I met and later married my French husband and living in France, I was able to win two higher degrees, a “licence” in philosophy, equivalent to a US master’s degree and allowing Immediate entry to the doctorate. Ten years later I got my PhD with honours in political science from the Ecole des Hautes Etudes en Sciences sociales, a quite prestigious part of the French university graduate schools system. Cost—about $150/year in today’s dollars for inscription and insurance fees. Comment: Totally impossible for me cost-wise had I lived in the US. With 17 books and innumerable talks, articles and interviews for various social / ecological/ political causes since, mostly without fee, I feel I have “given back”, as Americans like to say. Note: My four grandchildren have now graduated from a variety of excellent, highly recognised schools [except for some at masters’ level with modest tuition fees] in several disciplines and—barring global warming disaster—are set for life.
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