Healthcare Stories
Thank you to everyone who has sent in their universal health care story. As you can see from the very many stories in the pages below, many Americans living abroad feel strongly about this issue. We believe that our stories will make a difference by showing the many sides of universal healthcare - from an average check up, to a hospital stay, to stories about our lives being saved thanks to universal health care.
Would you like to add your story? It's not too late, here's how: Take a selfie with our selfie card (or draw your own!), then add your picture and story in the texbox. You can also make a video and send in the url (just add the link in the textbox).
We'll share these stories with Congress to help in their fight for affordable healthcare for all Americans.
Please note that the stories below are all user submited and reflect individual opinions.
Bankrupt and Dead Three Times Over #DAresists #Medicare4all
I would be bankrupt and dead three times over without Sweden's universal healthcare system. As long as we've lived here I've been grateful for knowing that everyone is covered, everyone has health insurance. We're a community, we help each other. Then I had reason to need that help myself.
1. In 2010 I had HPV-induced tongue-base cancer which had spread to a lymph gland. I received six weeks of daily radiation plus weekly chemotherapy, followed by brachytherapy (radium inserted directly into where the primary tumor had been). I got a radiation burn which got infected and I was in the hospital for a week, plus another week with the brachytherapy and complications. I was on a feeding tube for three months because of extreme pain in my mouth and tongue. The cancer has shown no sign of recurring. I was charged $10/day while in the hospital to cover my food. I got heavily-subsidized food pouches for the feeding tube. I paid about $125 for all medical visits during the year, and about $225 for all prescriptions. I've had excellent follow-up care at the dental-surgery clinic because the radiation damaged the circulation in my jaw. A wisdom tooth became loose and was just removed after 4 weeks of hyperbaric (high-pressure) treatments breathing pure oxygen for two hours each day -- plus another two weeks after the tooth removal.
2. In 2013 I had bladder cancer. One polyp was "shaved" away and three smaller ones were cauterized. Later I had six weeks of BCG (weakened TB virus) treatments twice, and still later six weeks of chemo treatments directly in my bladder. There have been 6-month follows throughout this period. Costs are similar to those above (except that I haven't been in the hospital -- and the tests and procedures weren't as high-tech -- so okay, I might not have been bankrupt that time).
3. In 2016 I had heart failure -- my heart was beating irregularly and at three-times it's normal rate -- and could hardly breathe. I was in the hospital for two weeks during which there were all kinds of high-tech (and expensive) tests conducted (angiogram, MRI, ultrasound), culminating in atrial ablation (a tube was inserted into an vein in my groin, then threaded through to my heart where small patches were burned out (scarred) to prevent electrical signals from firing irregularly. Since then I've been on four daily medications, at least one of which is quite expensive. All this with costs as above.
I feel totally healthy. I'm 70 and slowing down, sure. But I'm not dead. I saw my daughter graduate medical school last June and start her first job as a doctor, and have also seen my son (who is younger) get his first job and thrive. My wife seems to like keeping me around too. (She was also a major help, of course, in getting me through each of these episodes, especially the oral cancer and heart failure.)
Thank you to Swedish universal healthcare!
No more worry about seeking medical attention #DAresists #Medicare4all
Before moving to Germany to study, I had two medical incidents (one of them requiring an ambulance) that my insurance declined to cover. My savings were completely wiped out from the financial shock and the prices for the procedures were exorbitantly high (an ambulance in NY costs about $100/minute which came to $2000 after a 20 minute ride). Since coming to Germany, I've discovered the benefits of a system that is not based on the monetization of healthcare. I no longer have to fear the small print on the contract pages of an insurance company, and I don't hesitate to seek medical attention when I need it.
Fearing the bill/increased premiums interferes with our health #DAresists #Medicare4all
Before moving to Germany to study, I had two medical incidents (one of them requiring an ambulance) that my insurance declined to cover. My savings were completely wiped out from the financial shock and the prices for the procedures were exorbitantly high (an ambulance in NY costs about $100/minute which came to $2000 after a 20 minute ride). Since coming to Germany, I've discovered the benefits of a system that is not based on the monetization of healthcare. I no longer have to fear the small print on the contract pages of an insurance company, and I don't hesitate to seek medical attention when I need it.
Scorecard: Money and Longevity #DAresists #Medicare4all
United States Italy Gross Domestic Product per capita $57,467 $30,527 Health spending per capita $9,892 $3,391 Life expectancy at birth 78.8 years 82.6 years What’s Their Secret? As an American physician practicing in Rome I'm convinced the main reason Italians get more bang for their health care buck is that they have a single-payer National Health Service, financed out of taxes. Everyone can see their own primary care doctor and be cared for in the hospital without paying a penny, while medications, testing, and specialist exams require at worst a tiny co-pay. Add in low income inequality and a famously healthy lifestyle, and Italy has more than enough on the plus side to compensate for its medical system’s many flaws. Susan Levenstein, MD www.stethoscopeonrome.com
A Universal Healthcare system can coexist alongside capitalism #DAresists #Medicare4all
These Australian health care photos demonstrate that a Universal Healthcare system can effectively coexist alongside of capitalism. South Australia Health has brilliantly partnered with David Jones department store at Adelaide's Rundle Mall, for a space to provide free screening mammograms to all woman--even me as an American citizen residing in this great country. All woman to access the BreastScreen SA clinic had to pass through David Jones's shoe and lingerie department. I am sure products were purchased. A brilliant synergestic example of Universal Healthcare and Capitalism for a mutual financial benefit. Not to mention the ease, and reduction in fear for women to slip into pleasant store rather than an intimidating clinic for a mammogram. This also, provides for an increase in early detection as women more likely will get the recommended mammogram when either shopping or even better yet for some women, an opportunity to meet a friend at a nearby cozy cafe. I loved my mammogram experience and hope to share this partership opportunity back in the United States.
Romney Care was a life saver that should be available to all #DAresists #Medicare4all
My mother contracted Alzheimer’s in her mid 70s (about 20 years ago) after a fall and a hospital stay that required giving her morphine for the pain. Although she her broken ribs healed, her mind was never the same. Her general forgetfulness turned into otherworldliness. The cost of in-home daycare was prohibitive and after we got home, still wiped us out each night trying to keep up with her. She was still ambulatory, but was out of our control — sort of like a large 3-year old. After a few years of shuffling her back and forth between family homes every six months or so (my brother in Massachusetts, a cousin in Florida and eventually me in Guadalajara, Jalisco, Mexico), It was obvious we couldn't care for her that way any longer. She had worked all her life at low-income wages, had her own home, but couldn't live there any longer alone and her income was only about 600 dollars in social security per month. We looked into rest homes in Massachusetts, where my brother could keep an eye on her, but we couldn't afford them — the minimum cost was about 3,000 U.S. per month. My brother and Icould only come up with about 400-500 dollars per month each from our meager incomes. So we sold her home and she stayed in Mexico, where a rest home run by a well-respected gerontologist could take care of her for less than 14,000 dollars per year, everything included.She got progressively less responsive and finally couldn't recognize her family. Eventually, after almost eight years here in Mexico, even with us chipping in the money ran out, and we looked for other options. Ex-Governor Mitt Romney had run for president and while bad mouthing government-paid health care to appease the Republican base, but had left a fantastic system in place in Massachusetts. So we flew Mom home from Guadalajara (not an easy task) and worked the system for a couple of difficult months with expensive in-home care until we were able to get her into a rest home in Hyannis, were my brother could see her a few times a week and other nearby relatives could check in on her. The state health care system paid for everything and even left my brother with a few dollars each month from what was left from her meager social security so he could get her hair cut, buy her new clothes, some glasses so she could see us, ect. She passed away three years ago at 91 years old.We were thankful that she was well cared for her last three years in her home state and that we weren’t bankrupt in the process. I think that people who work their whole lives and play by the rules shouldn’t be dumped because they weren’t in a high-earning bracket.Most of the people I know make less than their parents did in the 1950s ‘60s and ‘70s, when the U.S. working class had pretty good wages and benefits. My dad, a fellow who never went to college, but is one of the Great Generation, who went to WWII and worked for the federal and state governments, makes more with his various pensions than I can take home with my white-collar job running my own business. That sums up a lot of working folks situations these days. If health care for the working class isn’t a priority for a nation that spends more on health care then any country in the world, then why should national cohesion be expected?How can we be expected to be good citizens when the country takes us for granted? I don’t advocate a socialized economy, but I think what I’ve read and heard about universal health care coverage is part of what makes the United States a great nation. It takes care of its own.I do not think that leaving the half of the nation that can least afford it to fend for itself when the chips are down is part of the American dream, that the Great Generation fought for or part of the legacy they left us. I've lived in Mexico for the past 27 years and see what unequal systems can do to destabilize national cohesion — and this in a fairly homogeneous country. In a country like the U.S. where more than 30 percent of the population are immigrants, only the rule of law and the idea of fairness can keep the country united. Don't let inequality in one of the most basic situations in life —the health of the nation's people — make the country I have been mostly proud to call mine turn into a place where only the rich can survive. Sean Godfrey Former Massachusetts resident Registered Democrat
Many experiences in France #DAresists #Medicare4all
Aside from the usual and thankfully banal problems of bearing and raising three children, I can report on fairly major issues. NB: I also have a “mutuelle”—a collective non-profit complementary health arrangement that costs approx. €2000 a year and covers the 30% French social security doesn’t pay in some cases. Except in the last, worst item below I don’t remember which paid what. --A hard fall on cement the night before I was supposed to lecture in Oxford resulted in a hip replacement and hospitalisation for almost two weeks [Radcliffe Hospital] plus special transport arrangements home to Paris. French social security and probably the mutuelle reimbursed costs to the Brits. --Three fractured vertebrae and three “vertebroplasties” in which they inject resin cement: cost zero --Worst: in late 1999 my husband was diagnosed with a fairly rare form of cancer : He died a year and a half later after two operations, one very long and risky, intensive care, a whole variety of convalescent measures at home or in hospital, daily nursing visits when at home and, a particular blessing in the circumstances, he was able to spend the last two weeks of his life surrounded by his family at home, in a hospital bed with perfusion and three times daily visits from a nurse as well as regular ones from our family doctor. He could self-administer doses of morphine as needed and we were all with him when he died. Cost for us: Zero, entirely paid by French social security since he had a recognised “serious illness”. I sometimes tell this story now in talks to encourage the French and other Europeans to fight for all our public services, explaining to them we would have had to sell the house if we had lived in the United States. Since I have mentioned giving talks, it may be worth adding that after Smith College junior year abroad where I met and later married my French husband and living in France, I was able to win two higher degrees, a “licence” in philosophy, equivalent to a US master’s degree and allowing Immediate entry to the doctorate. Ten years later I got my PhD with honours in political science from the Ecole des Hautes Etudes en Sciences sociales, a quite prestigious part of the French university graduate schools system. Cost—about $150/year in today’s dollars for inscription and insurance fees. Comment: Totally impossible for me cost-wise had I lived in the US. With 17 books and innumerable talks, articles and interviews for various social / ecological/ political causes since, mostly without fee, I feel I have “given back”, as Americans like to say. Note: My four grandchildren have now graduated from a variety of excellent, highly recognised schools [except for some at masters’ level with modest tuition fees] in several disciplines and—barring global warming disaster—are set for life. Long live Bernie Sanders!
15 Years of Great Coverage in the UK #DAresists #Medicare4all
Dear Julia, I am a US citizen who is living in London because my husband of nearly 14 years is British. A very persuasive argument for convincing me to move back to London was the NHS. We met while I was teaching in France on a Fulbright Exchange and lived in London after marrying, which is how I learned how much better life is with universal healthcare. Although I talked my husband into living in the US with me, we found our health insurance payments were overwhelming--approaching the cost of our mortgage, although the standard of care was not better than the care we received when living in London. We knew how great the NHS is, and appreciated the excellent care we received when my husband was hospitalized for pneumonia for 17 days treatment at Kingston Hospital here in the U.K. As I looked at retirement and the end of my employer sponsored insurance, the cost of and quality of healthcare was daunting, so we returned to London. I have many friends who have expressed envy at my choice. I cannot accept the heartless sacrifice of lives in the USA that is required to fund the profits of the healthcare and insurance industries. My own two daughters from a previous marriage struggled to find any healthcare after they grew too old to be covered by my plan. In their twenties, neither was able to find an employer who offered health insurance or an affordable plan until the ACA was passed. As a result of this healthcare, each daughter was able to receive treatment for problems that had worsened for lack of treatment. I worry about how they will suffer if the Republicans are able to repeal the ACA. When I look at the healthcare available to so many countries, I am distraught that my daughters, and now my grandson, will face lifelong struggles to remain healthy as well as possible bankruptcy and financial ruin just because we are all Americans, born in the richest, most powerful nation on Earth but seen as nothing but consumers. I hope my thoughts on this life-or-death issue are of some assistance in any appeal you can make to our legislators. I have called and emailed my home state's senators to thank them for fighting each of the continual attacks on the ACA, and have contacted through phone calls and postcards other senators to ask them to reject the Cassidy-Graham bill. Kind regards, Debra Daniels
Great experience in Ireland #DAresists #Medicare4all
I live in Ireland and have access to low-cost universal universal healthcare. Ireland is a little different as we are on a two-tiered system - public and private - and the public option isn't free (unless you have a medical card) but it is very cheap. If I go to the doctor, it cost me €50. If my doctor refers me to a specialist on the public option, it is free. Same for emergency room. I once had to go to the emergency room and have X-rays - that cost me only €60 total. We also have a prescription scheme here that caps the amount you pay for prescriptions at a certain amount each month. Once you hit that amount, if you need to fill more prescriptions within that month, you don't have to pay for them. This is useful for expensive birth control and other types of medication. I hope this helps! Hilary Gray
Great experience in UK #DAresists #Medicare4all
I have a history of very early preterm labor. With an injection from 16 to 36 weeks, that risk of early labor and premature birth is minimized. When I was in the US a few years ago, this drug cost $1,500 per shot (so $30,000, before insurance). It was a big deal for me to find insurance that would cover it, and it involved possibly moving states--in the middle of a high-risk pregnancy. The same drug here in Ireland...I walked out of the pharmacy with all 20 doses for about $80. This drug helped me reach full term for two pregnancies. I hate to think about the parents in the US facing another NICU stay or loss of a child because this drug is prohibitively expensive. (It used to cost $10/dose in the US before the drug company hiked the price a few years ago.)
Great experience in U.K. #DAresists #Medicare4all
When I lived in the US, I had medical care until I was 21 because my parents were working for the US military. After that, I had no medical coverage whatsoever until I managed to get a job with a company that was in an HMO network. Even then, I didn't want to see a doctor because of the co-pay and luckily I never had to go to the emergency room. Now, in the UK, I don't have to worry how much a doctor's visit will cost me. I can feel free to speak to a doctor about a mild pain I've had for years, or for a very bad migraine or illness. No, it's not perfect, but it's far better than what most people in the US have to deal with. Horror stories of people killing themselves because of medical bills don't exist in the UK. Cancer patients and car crash victims don't have huge bills that debilitate them for decades after surviving. Universal healthcare works!
Great experience from New Zealand #DAresists #Medicare4all
Last year I tore my ACL skiing in New Zealand while there on a working holiday visa. After a trip to the physio I learned about ACC; a program that provides healthcare coverage to everyone within the boundaries of New Zealand if they are injured in any type of accident. At the time I was 25 and had just lost my American health insurance the month prior when my dad lost his job. So my options were to stay in NZ and have knee surgery done without having to pay anything out of pocket, or return to America for surgery and be in debt thousands of dollars. As a recent graduate I was not too keen on adding medical debt on top of my student loans. I was due to leave New Zealand in 10 days and had no intentions of staying but obviously I had to for the surgery. It took me a while to get over how insane it was that I couldn't return to my OWN COUNTRY to have surgery where I'd have my family to take care of me. Lucky for me I had an incredibly generous group of Kiwis who got me through this difficult situation, both physically and emotionally. -Kaylyn Hobelman
An experience from Mexico #DAresists #Medicare4all
I had colon cancer surgery in Sept. 2012 and 6 days released from the hospital with a staffed infection in my left arm which was twice as my right and I lost 12lbs in my eight day stay.My Medicare paid and Blue cross/ bule Sheild paid.In 2015 I had a heart attack while in Mexico and the surgeon installed stilt on 9/2015 and my insurance paid the hospital.Three mouths later. I had my right kidney removed with a 2.5 cm cancerous tumor. It took two years to settle with the insurance company and the dollar exchange changed by a loss of 1200.00 usd.which I lost because of stupidity on the insurance company.Then two weeks I get a letter needing more info for the same claim. The company has to many hands on claims at different locations and the brain power is lost.
Universal Coverage Works in Canada #DAresists #Medicare4all
The purpose of Canada’s universal health care system is to provide ALL residents with equal access to quality medical care. I’ve had a few episodes requiring major surgery and had quick access to all the services I needed. The universal system also provides constant ease-of-mind; we know we have the medical coverage we need.
A comparative perspective from the U.K. #DAresists #Medicare4all
I want to take some time to talk about usual discussions comparing different healthcare systems: Most comparisons in the US are between the US system and nationalized systems (in Canada, UK, Germany, Australia, Sweden, France...etc); often times such comparisons talk about waiting times of elective procedures. (1) Talking about Elective Procedures is the wrong measure/yardstick! Just because a country has a national healthcare system does not mean it has no private healthcare -- all the countries (Canada, UK, Germany, France..) have private healthcare and citizens can choose to have private in addition to their nationalized systems (talk about CHOICE). (2) Talking about waiting times for procedures (elective or non) is also the wrong yardstick: Waiting times in nationalized systems are related to the amount of funding (or lack thereof) in the system; in the UK, funding cuts in the last several years have led to increased waiting times -- if cuts did not happen (especially in highly populated areas), wait times would not have increased. Same as MN having better bridges if the capital spend had been approved. (3) Competition reduces costs and improves products/services: While competition is good in general, it is better to reserve the competition for more complex/elective needs while offering a universal healthcare for at least the basic health services (level to be defined). This way, one can have the benefits of competition AND have the citizenry access basic healthcare. Current not-for-profit hospitals are not a low cost delivery method of healthcare, certainly not basic care. Not-for-profit hospitals employ large finance teams, issue and refinance bonds almost annually, hoard billions of dollars of cash reserves (2x level of debt) in order to get favorable Moodys and S&P credit ratings so they can issue bonds, therefore hire other finance teams and asset managers and consultants to manage those cash reserves, etc -- in essence everything but "basic and essential care". All these points have something in common -- dialogues in US comparing the systems appear to be all-or-nothing-at-all (black-or-white) while there are several shades of grey (I have heard the number 50 thrown around). It does not need to be only-private or only-national. Let us get our American can-do attitude and solve this elegantly. US systems in general appear to be very complicated (128% of Federal poverty level -- who comes up with numbers and tables like that) and complexity adds costs to any system. Just as the Government is trying to simplify and overhaul our tax system, we should also consider removing complexity from our healthcare system.
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